Patient Organisation

 

International Pompe Association
c/o VSN, Luitenant Generaal van Heutszlaan 6
3743 JN Baarn, The Netherlands
Phone +31(35)5480480
E-mail  info@worldpompe.org
www.worldpompe.org


For a national patient organization, please check via the website of the International Pompe Association.

 

Caregiver Action Network

Caring for Rare Disease Caregivers 1130 Connecticut Ave. NW
Suite 300
Washington, DC 20036
info@caregiveraction.org
www.rarecaregivers.org

 

More Institute:

The Pompe Center at the Erasmus Medical Center

National Institute of Neurological Disorders and Stroke