Patient Organisation


International Pompe Association
c/o VSN, Luitenant Generaal van Heutszlaan 6
3743 JN Baarn, The Netherlands
Phone +31(35)5480480

For a national patient organization, please check via the website of the International Pompe Association.


Caregiver Action Network

Caring for Rare Disease Caregivers 1130 Connecticut Ave. NW
Suite 300
Washington, DC 20036


More Institute:

The Pompe Center at the Erasmus Medical Center

National Institute of Neurological Disorders and Stroke